The Ontario Neurotrauma Foundation (“ONF”) is a not-for-profit applied research organization with a mission to improve the quality of life for those living with an acquired brain or spinal cord injury and to prevent these injuries in the first place.
ONF may change this policy from time to time by updating this page. You should check this page on occasion to ensure that you are happy with any changes. This policy is effective from August 2015.
We are dedicated to ensuring your confidentiality by protecting the personal information you provide to us. That commitment is fundamental to the way we do business and is reflected in our privacy policies, which we have developed to comply with the Personal Information Protection and Electronic Documents Act (“PIPEDA”) and the guidelines and principles it prescribes.
In addition to the principles and guidelines of PIPEDA, the collection and use of your personal information may be affected by any contractual agreements that you may have directly with ONF.
2) IDENTIFYING THE PURPOSE OF COLLECTING PERSONAL INFORMATION
What is personal information?
Through using Loop we may sometimes receive personal information about you. Personal information is information about an identifiable individual such as someone’s name, address, phone number, personal email address, social insurance number, gender, income or family status. Personal information also includes employment or health information. In order to achieve its mission, ONF may request the following types of personal information through Loop:
- Contact information including name, address, phone number, and email;
- Information related to your employment
- Photographs to use in future publications including (but not limited to) newsletters and websites;
- Personal or professional stories (which are voluntarily provided); and
- Other information you voluntarily submit, including health information about yourself or those you care for.
We will also collect ‘aggregate information’ through the use of ‘cookies’ (see “Cookies” below) to monitor the use of the Loop website. Typically, we collect information about the number of visitors to this website and to each web page and the originating domain names of visitors’ Internet Service Providers. We will also track activity and emerging themes from Discussions, Events and Workspaces.
What we do with the information we gather
ONF collects and uses personal information for purposes necessary to fulfill its mission and to comply with any legal requirements. This includes but is not limited to the following purposes:
- To share information about ONF with stakeholders and those who may be interested in our activities;
- To establish, build, and maintain relationships;
- To periodically send you emails (to which you have subscribed) relating to Loop news or information which we think you may find interesting, using the email address you have provided;
- In the case of photographs, for use in our electronic and print publications
- To share personal or organizational stories and lessons learned
- To facilitate the Library Service offered to all Loop users
- To track and evaluate the impact of Loop and the Fall Prevention Community of Practice
- To share and exchange knowledge with other Loop users
- To apply for and/or receive grants to sustain the work of ONF
- To improve our ability to attain the objectives set out in our mission.
We also use aggregate information to understand the use of this website and may share it with other third parties who are assisting us in the development of this website.
We may monitor Loop user traffic patterns and website usage to help us to improve the design and layout of this website, and personalise your experience by tailoring the content you see, thus optimising your experience.
We may also perform statistical analysis on our users’ accounts to determine, among other things, how many of them are active, how frequently they are used and how many of our websites members are registered with. We may also obtain information about your opinions if, for example, you send us feedback or ask us questions.
We may disclose personal information in order to comply with a legal or regulatory obligation.
3) OBTAINING YOUR CONSENT
ONF will not collect, use or disclose an individual’s personal information without their knowledge and consent except in certain instances where permitted by law.
ONF will require individuals to consent to the collection, use and disclosure of personal information only if such collection, use or disclosure is required to fulfill the identified purpose.
ONF will determine the type of consent required based on the type of information collected, its intended use and the sensitivity of the information. In the case of photographs, videos or other images which are taken at events held by ONF, we will request your approval prior to use.
Consent may be expressed or implied, given orally, electronically or in writing.
An individual may withdraw consent at any time on sufficient notice to ONF subject to legal and contractual limitations by contacting us at the address provided below. The individual will be notified by ONF of the implications of this withdrawal.
4) LIMITING COLLECTION OF PERSONAL INFORMATION
ONF will limit the collection of your personal information to that which is necessary for the purposes identified by ONF. This information will be collected by fair and lawful means at all times.
5) LIMITING USE, DISCLOSURE AND RETENTION OF PERSONAL INFORMATION
Your personal information will not be used or disclosed by ONF for purposes other than those for which it was collected, except with the consent of the individual or as required by law. Your personal information will be retained only as long as reasonably necessary for the fulfillment of those purposes or as required by law.
6) ENSURING THE ACCURACY OF PERSONAL INFORMATION
We will make reasonable efforts to ensure that personal information of individuals is kept accurate, complete and up-to-date as is necessary for the purpose for which it is to be used.
We will make reasonable efforts to obtain information from individuals in order to update information on hand if required to fulfill the purpose for which the information was collected. If we are informed that your personal information is incorrect, we will update this information as soon as possible.
We will not update your personal information without your consent.
Loop users may update their own personal information by editing their profile and settings on the Loop website.
We are committed to ensuring your information is secure. To prevent unauthorised access or disclosure, we have put in place suitable physical, electronic and managerial procedures to safeguard and secure the information we collect online.
We will ensure all employees of ONF and its affiliates are aware of the importance of maintaining confidentiality of personal information and will be trained as how to safeguard this information. Employees of ONF are required to abide by this policy
When you use this website, you will receive cookies. These are both session cookies and third-party cookies. If you would like to learn more about cookies, visit www.aboutcookies.org, which contains comprehensive information on how to accept or decline cookies on a wide variety of browsers.
9) USE OF INTERNET PROTOCOL (IP) ADDRESSES
ONF uses IP addresses to assist in diagnosing server problems. We reserve the right to perform statistical analyses of user behaviour and characteristics, to measure interest in and user traffic patterns to the various sections ofLoop, to prevent abuse in our online forums, and to help us improve design, layout and navigation.
10) LINKS TO OTHER WEBSITES
Loop contains links to other websites that may be of interest to the visitor to our site. Whether ONF or Loop users provide these linkages, ONF is not responsible for the privacy practices, content, transactions, and functioning of the linkages of these sites. Users submitting information to these third party websites should review the privacy statements of these sites before providing them with personally identifiable information.
11) POLICY UPDATES AND CHANGES
12) OPENNESS CONCERNING POLICIES AND PRACTICES
You may obtain specific information about our policies and practices relating to the management of personal information by contacting us at the address below.
13) INDIVIDUAL ACCESS
Please clearly state on all communication your name, your username and the name of this website. A small administration fee may be payable.
Ontario Neurotrauma Foundation
90 Eglinton Ave E. Suite 601
Toronto, Ontario, M4P 2Y3
For quality control and training purposes, we may monitor or record your communications with us.
14) CHALLENGING COMPLIANCE
Federal Privacy Commissioner
112 Kent Street
Place de Ville Tower B, 3rd Floor
Toll free: 1-800-282-1376